After being in the hospital for three days after having her biliary lines changed I told the doctors to release Lorrie and let us go home today. They obviously have decided not to do anything more in a curative nature I believe because we have Hospice in play. It's just as well because I can take over where they left off and make a difference in her comfort. She has been home almost eight hours and been resting peacefully without much pain at all. She has been drinking a new protein formula that we found and is keeping it down. It is called IsoPure and it is 100% Pure Ion Exchange Whey Protein Isolate. If she can manage to drink it each day it will supply her with the necessary proteins her body isn't getting and give her a fighting chance to gain some needed weight. The past few days have been incredibly hard for Lorrie in the hospital because being labeled stage 4 terminal cancer patient in a minimal Hospice care treatment state, they have done what they seem to think they do best buy pumping her with excessive amounts of Diladid pain medication over the past couple of days. Once I found out that they were giving her 2 mils of the pain medication I then understood why she was so delirious and non communicative. I told them to give her half that amount and if she needed more to give her the other dose of it. All of a sudden five hours later, we were carrying on conversations about getting out of there the next day. I'm not saying they were intentionally trying to over medicate Lorrie but they service so many people with this disease and they feel that it is in the best interest of the patient to push the medication factor to the limit in order to make them comfortable. Hospice met me in the hospital and told me that they spoke with the resident doctors and they feel that I should place her in their in-Hospice treatment center and continue to treat her pain levels more accuaratly and I responded politely with a definite resounding NO!! Alicia and I are at her side everyday and we have got a great balance of care between the two of us. I would have never thought in my wildest dreams that one day I would be having to care for Lorrie the way we do daily but I wouldn't have it any other way. If she could find a way to drag my 250 pound ass around the house she would do the same for me. She's got 100% of my attention and love through this battle we fight together. Kari, Lorrie loved your post and promises to fight with all she's got. Thanks again for everyones support...
Sunday, January 23, 2011
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11 comments:
Dear Cousin Lorrie,
Even though we have never met, I feel like I have known you for years thanks to Scott's updates. I want you to know that you are the epitome of faith, courage and strength. My girls go to a Catholic school and have prayer intentions every day. My youngest daughter Megan, who is 10, prays for you with her class each day. Just wanted to let you know that your East Coast family loves you so much and is praying for you.
Love, Teresa McGee
Lorrie......I have no doubt that you will continue to keep the fight going!!!
Scott...again thanks for the updates.......it has been very comforting for me to be able to check in on her with out being a bother to everyone! If you would please give her a big hug and kiss for me I would really appreciate it!
See you in Feburary LORRIE!!!
xxoo
Kari
Lorrie, we all love you so very much. I can only imagine how tired you are from this fight, but your strength and determination say so much about your character. You are constantly in our prayers and we think of you multiple times a day. I must also say, what an amazing family you have and the love and dedication between the four of you is inspiring! We are all with you for as long as this fight lasts. Keep up the positive thoughts.
Love, Jessica and Billy
Blessings to all of you! Scott, THANK YOU so much for keeping us updated on this blog with recent updates on Lorrie. I know you and Alicia are doing everything humanly possible to keep Lorrie comfortable. My heart goes out to you. Lorrie, you continue to amaze me with your will and determination, I love you. I would love to be able to come by and sit with you for a little while. Hugs, Mona xoxo
Lorrie ... I love you and wish I could be there by your side. Scott and Alicia is your ROCK and I praise GOD that HE chose both of THEM in your life. Your Strength and Grace through all of this is an inspiration to us all. My prayers are for you daily and you continue to amaze me on how strong you are. Keep your spirit fighting my Sister.. I love you so very much.
Scott and Alicia my heart and spirit is with all of you..I love you all..
Love,
Lisa Barker
We have to experience sadness so that we may better measure joy. Life has a way of balancing the sorrow with the joy, the disappointments with the hope, and the emptiness with the meaning.
"A life watered by the tears of tragedy and suffering
Often becomes the most fertile soil for spiritual growth
My prayers are with you Lorrie and you precious family
Carol K
Lorrie has her boxing gloves on...and is ready for this fight!
She has great champions in her corner to stand with her and fight this with her.
May God strenghten you daily with the prayers and care you are recieving. I wish I could be there to help you guys.
You have my heart,
Teresa
Lorrie, I truly believe that your continued indomitable Spirit and beautiful, loving heart epitomizes the true intended human soul to habitat this planet; in the Animal Kingdom we would recognize you as "Bambi."
Your Spirit so filled with love and caring replicated itself in your very beautiful daughter, Alicia...and I know you are so proud! And, without a shadow of a doubt, your son, Colby, another loving and caring creation from within.
Scott, my God! You, my friend, a pillar of true love and strength when the rubber finally meets the road...a real man, indeed!
Mark...what you posted was so true beyond words. I think it express's the thoughts and heart's of all of us who know and love this precious family. I couldn't be more proud of the man Scott is, and her spirit that encomposes and shine within her kids that Lorrie has.
Dear Lorrie,
What a blessing you are, and these posts such an inspiration of hope, love, peace, and trusting in God. You are such a strong woman with survival skills that many could only think about - you are holding tight. My faith has become stronger because of you and your struggle with all of this. Know that you are so loved by everyone and the little green lamp from the sale at Lindas a few months ago - has been warmly lighting a cute little corner of my kitchen since; and a peaceful reminder of you.
Scott - you are a blessing to Lorrie and I know how much you are as well, blessed by her. You two, with your son and daughter - are quite the winning team.
Here's to our next miracle for Lorrie. All my love, Jan M
Dear Lorrie,
What a blessing you are, and these posts such an inspiration of hope, love, peace, and trusting in God. You are such a strong woman with survival skills that many could only think about - you are holding tight. My faith has become stronger because of you and your struggle with all of this. Know that you are so loved by everyone and the little green lamp from the sale at Lindas a few months ago - has been warmly lighting a cute little corner of my kitchen since; and a peaceful reminder of you.
Scott - you are a blessing to Lorrie and I know how much you are as well, blessed by her. You two, with your son and daughter - are quite the winning team.
Here's to our next miracle for Lorrie. All my love, Jan M
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